Monday, February 20, 2012

Pimp


Forgot to do some necessary pimpage.

I posted over at Mission: iPossible on Friday that we have started accepting new applicants for Mission 3. More than that, I essentially just started a new process that allows the overall application process, because we are taking this whole thing fairly slowly, to just remain open-ended.

Why the snail's pace? Mainly because it is still a matter of only being able to give it so much time in a day. I would love it if I were able to make it a full time responsibility, I really would. It would please me to no end to somehow turn it into some kind of career.

But for the time being it is not, and I had to admit that to myself and the best way to do that was to segment it for the time being by suggesting that we keep it formatted by keeping quantity of iPads linked to the actual Mission number. So Mission 3 would have 3 iPads, Mission 4 would have 4, 5 would have 5, etc.

Heather was cool with it, as was our other Super Secret New Member that I will be revealing shortly on the MiP site. Need more people though. Want to turn that into more of a Contributor-type site. Kind of like what Fruitless Pursuits is...but for Special Needs communication.


Which reminds me. How remiss have I been THERE of late? Holy Crapazowley! That's another commitment I need to re-energize. And I will. As I've hinted, The Bennett Situation has just started to recede some, like a low tide, so the pressure is starting to ease up.

I will say this though, and it baffles the shit out of me. He walks in the other day, coming home from school, Bennett I mean, and blows my mind by (sort of) singing 'Head, Shoulders, Knees & Toes'. And I mean, nearly the entire freakin' song.

Pieces of my jaw still litter the foyer. And he still can sing it, in Benglish obviously, fairly often.


But it takes HERCULEAN effort, still, to get him to say 'Hi, Daddy.'

WTF!?!?

I say to thee that it continues to vex me, however, that, every day, when I say 'Bennett, what's your name?' he says 'Ben-Ben.' and then I say 'Bennett, what's MY name?' and he says 'Kee-Ko!', which is the name of our Home Health Aide.

Baffling.

I know.

I obsess over STUPID SHIT.

On Danielle's blog, she showed a developmental chart, and I was looking at it this morning. And while I feel it is important to jump up and down and high five and celebrate and be giddy as school girls about all the great things Bennett can do, because I am very excited about these things, and I do always count my blessings with him, it is important also to check raw data from time to time.

Danielle you need to start a school.

On that chart? I tried to show where he is. The bleed into the 2-3 is only slight, because of what I believe he understands.


This is NOT to pee in the cornflakes. This is to be realistic.

While I think it is always important, like I said, to be joyful about Bennett's successes, it is equally important to sometimes toss a cold glass of water in my face and remember that there is a lot of work, a lot of work, a lot of work, a lot of work, a lot of work that remains in front of us, and while we will always strive for him to reach his best potential we need to remember that he is severely disabled only because, as we enter Spring and Summer, I don't want to see him accidentally put in harm's way.

We can't forget his limitations. Nobody can.

BUT...that doesn't mean I'm not going to do everything I can to help him overcome every single one of them. And who knows? Maybe he'll help me with a couple of mine.

OUT.

7 comments:

  1. You'll do it together,the finding your way part, the two of you, the FOUR of you actually, you always have.

    I love the singing.Music to the ears, in my opinion.

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  2. All I can say is that as you work, work, work, remember to replenish yourself and your family. I think that's one of the only regrets I have of my early years of dealing with Sophie and her disability -- I did nearly nothing to replenish myself, and the seventeen years that have gone by have taken their toll in ways that might have gone differently if I had.

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  3. E, it is taking its toll on me. Hence the Plus 500 Trig count and dangerously close to Diabetes thing. I hear you I really do. I must lower my stress levels. It is dire.

    And Heather it is really cool, I am trying to get it on a short video. Sometimes he is willing, others he gets too aware of it.

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  4. On a number of occasions I've had the following happen; a mother with her tot and the small child sees me and says "Daddy!", whereby the mother corrects the child, "no, dear, 'man', that's not daddy". You see what I'm saying? The child knows I'm not his/her father, just indicating with the vocabulary at hand that I'm like her father, a man. Your son's use of vocabulary is selective because his thinking is not the regular linear yours uses.
    Both my 'regular' kids didn't speak before they were two years old. My eldest has been repeatedly called 'brilliant' and 'underachiever' in the same breath by many, many educators throughout his scholastic period. Milestones, meant for the average kid are, in my humble opinion not something you should be obsessing over, though it's your right to do so of course.
    I agree with Elizabeth because you know what? The work will always be there, as will the worry.

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  5. It hit me like a ton of bricks at Super-T's IEP meeting when they told me he was functioning at a 2-3 year old level (at chronological age 11.) Uggh!

    However, I will keep celebrating his accomplishments! I don't know any 2-3 year olds who can read 30 words. And it thrills me any time I find something T can do that a typical friend who is 4 can't do. It happens, but not too often.

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  6. Shame it wasn't us who hit the RI powerball. I just might have started that school. ;)

    xo

    ...danielle

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  7. Deacon (now 2) falls into the 4-8 month range...speech therapist is coming for her first visit on Friday.

    I stopped by to show you some cupcakes that made me think of you: http://pinterest.com/pin/158048268142952245/

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