It's really tasty, the one I'm munching on right now...want some?
I'm just having a shit day in the middle of a shit week in the middle of a shit month. What's that you say? Shit is a bad word? Well...NO SHIT. Hey...it ain't a family show here, and sometimes I just need to vent, so I'm gonna. Just realized it is Tax Filing Day too...so, it's probably a shitty day for a LOT of people in the Unites States of America.
No real updates people...yup, my son Bennett still seizes every day, and they are getting worse not better. AWESOME!!! I barely spend any time with my other son because I am in such a foul place mentally and by day's end I am pretty wiped out frankly. SWEET!!! I spend pretty much every evening after making dinner and clean-up just waiting for a seizure cluster to come so I can grab my pen and paper and make notations. I even have a nifty Excel spreadsheet to record his seizure activity now. Isn't that GRAND? WOOHOO!!!
Today is that 'presentation' of Bennett's case to a bunch of doctors and interns and residents and junk. Maybe that has me on edge too, I dunno. We've been trying to reach anybody involved over there at the hospital since Monday morning to let them know that his seizure activity is on the rise, not going down, and nobody has called us back.
So much for getting them that info BEFORE the fuckin' meeting. Nice goin' guys.
I can't STAND it when someone does not call me back in general if the MULTIPLE messages have any sense or statement of urgency but when it comes to my sick child? That is something that really makes me want to put my fist through somebody's rib cage Bruce Lee style and walk away with a still-beating heart in my hand.
I just need a win this week in one thing, and that will be enough.
It's only Wednesday, I got time.
Let’s close today's lovely romp through my septic thoughts with some beautiful photos of my sons...that always makes me feel better. Though I cannot get Carter to sit still for photos these days. He just hates it. Bennett? Total ham. He's gotten super chunky too, hasn't he? It's that ACTH...100,000 dollars and all Bennett got for it was five extra pounds and four empty bottles. Nice.