This week was supposed to have all these positive posts about Carter, but I need to interrupt that.
There is something I would like to share. I sat here for quite a while wondering how to word this, how to phrase it, what exactly I should write. The simple fact is I am not really sure WHAT to write, or how to, but I need to.
My wife and her sister are friends with a young woman named Kelly. Around 8 months ago Kelly and her husband Zachary delivered a beautiful boy named Lincoln Lewis Wheatley into this world. This past Monday, July 13th, he died.
Lincoln had a very rare disease, one that affects maybe 1 in every 100,000 children in the world, called Type II Gaucher's Disease. Gaucher disease is an inherited metabolic disorder in which harmful quantities of a fatty substance called glucocerebroside accumulate in the spleen, liver, lungs, bone marrow, and sometimes in the brain. Most children with Type II Gaucher do not survive past the age of 2.
Mind you that they had NO diagnosis at all from the local Children's Hospital (that we stopped going to months ago) even though he had issues gaining weight even at the 2 month mark, struggled with his health, etc. He had been getting more ill over the past couple of months and during the last hospitalization the doctors there figured out what was wrong. They said they had never seen a case of Gaucher, ever.
I'd like to share the obituary here if you don't mind, written, I think, by his parents.
Lincoln Lewis Wheatley age 8 months, passed away peacefully in his mother and father’s arms on Monday, July 13, 2009 at Nationwide Children’s Hospital. Lincoln had a vibrant personality and a great smile. He had an everlasting impact in his short time with us. He will be greatly missed and will always be in our hearts. Lincoln is survived by his mother and father Zachary and Kelly (Dennison) Wheatley, grandparents Rick and Chris Dennison, Gary Wheatley and Cheryl (Weibush) Wheatley, great grandparents John and Twila Hill and Helen Dennison, Uncle Bart and Aunt Kristina Dennison, Uncle Nate and Aunt Heidi Dennison, Aunt Tiffany and Uncle Glen Lightfoot, cousins, Camryn, Brooklyn and Ramsey Family will receive friends Thursday from 2-4 and 6-8 PM at Schoedinger Worthington Chapel, 6699 N. High St. (1/2 mile south of I-270). Funeral service will be Friday at 10 AM with burial to follow in Kingwood Memorial Park. Lincoln was recently diagnosed with a rare disorder known as Gaucher Disease. In Lincoln’s memory, memorial contributions may be made to the Lincoln Lewis Wheatley Memorial Fund, proceeds to benefit the Children’s Gaucher Research Fund. Online condolences may be made to www.schoedinger.com.
What an awful, awful thing. I just can't wrap my head around why so many children have to suffer. It makes no sense to me at all. At all.