The day started great, and continues to be awesome. Neuro-Surgery came in and cleared Bennett for discharge. Then Epilepsy came in, discussed the med situation and cleared Bennett for discharge.
We're going home today. TODAY.
Hard as it is for me to even imagine, Thursday my son had major brain surgery. Today, Monday, four days later, we are going home. Felt like a month. But what a SHORT period of time when you really think about it.
Neuro-Surgery said his incision looked great, they'd already told us the follow-up MRI looked clean and how it was supposed to. Gave us some stuff to keep in mind about the healing and so on, and of course that they will let us know when they do about the pathology.
Epilepsy said they reviewed all the EEG data from the past two nights. There was some spiking, some re-settling, some oddness in it, but they said it wasn't anything that we really needed to worry about. They said he had ONE spasm overnight last night that was indicated by the tech. The suggestion was that it was probably again just a result of the healing...takes a while for the brain to learn that it doesn't have to do that anymore.
The Epileptologist said that the true 'hypsarrhythmia' was gone from the EEG. She also said to keep him on his current meds and that we would not be adding any more. This worries me a LITTLE bit, cause I was hoping to start the Vig wean sooner rather than later, but they agreed we could start a wean or transfer to another med if needed in 6 weeks. That's the follow-up time, six weeks from now.
Told us that if noticed anything at all that was strange, to give them a call, and don't be ashamed to do so...they understand that we will be watching him like a hawk, and are happy to hear from us to either help us cope with a fear or see him in the event we describe anything that concerns them.
So that's it. I went back to RMH to pack the car and clean the room. I'm done. I sit here at RMH, Jen sits at the hospital with Bennett waiting for the discharge to come through. As soon as she calls I will drive over, patient transport will wheel them down and then we are headed to Columbus.
Frankly, I'm stunned, but happy. I'm scared, but hopeful. But I am ready to get my family back together and all be under the same roof tonight. That will be very, very nice indeed.
See you on the other side...