Meantime, back to some educational stuff on Epilepsy with Episode 4: Understanding Generalized Seizures, from the series I've been linking to from the Epilepsy Therapy Project. While Bennett does not experience a 'typical' Generalized Seizure, he does have what is often called a 'secondary generalization' in his EEG readings, and from time to time has the absence style staring described in the video.
I'm told that, even if the surgery in a couple of weeks is successful in stopping the Infantile Spasms seizures that Bennett will still have a high probability of having other seizure types as he moves through life. I can live with that, as long as we also have a chance of controlling them with AED's and he has an opportunity without the IS to learn and grow and maybe catch up to his peers.
Something else I wanted to share. Came across it in one of my many hours spent reading about epilepsy. Some medications, and by that I mean non-AED medications, can possibly cause seizures. Never ends does it? And the thing is nobody really knows all this shit, I mean the Pediatricians, so WE have to be the ones who learn it all.
Here's the article itself and here's the link to a PDF of the meds list. Interesting to see Ritalin and Concerta on there, since a lot of kids might beat their seizures early on but might have an ADD thing and then these drugs have a shot at causing a breakthrough seizure.
Definitely made me think of Jen and her family only because I know her son has battled both Epilepsy and ADD. I know they've tried Adderall XR (I was on that for a while) and Vyvanse (which I just started taking for the first time Saturday, August 15...yes, as I write this, today was my first dose), but not sure if they've tried the Concerta or Ritalin.
Anyway, important stuff all around to know.