On the Road Again
As I write this, I am a bundle of nervous energy. By the time you read it (it's scheduled to go live this afternoon), I'll probably be calmer, because I'll be en route to Cleveland Clinic, for this week's surgery with Bennett. It's much easier to cope when I have tasks like driving, checking in to a hotel, etc. to focus on.
To recap: Bennett is having a Temporal Lobectomy to remove a brain tumor/cortical dysplasia that has been causing him devastating seizures, resulting in a regression developmentally (cognitively speaking) to essentially that of an 8-9 month old. Goal? Remove the problem areas, rule out malignancy through pathology, stop the seizures. This surgery might allow him a chance to learn like anybody else does if it is successful in stopping the seizures, though it's success in that area will only truthfully be able to be measured over time.
Now, people have asked for specific addresses and locations. First of all, you don't need to send a thing. I appreciate it, but it is absolutely not necessary. But if you decide to, you'll have to call up the Cleveland Clinic yourself and get info on how to get your package to Bennett. I know he will be in the ICU for recovery for at least a day, maybe 2, then he gets moved, to a Pediatric floor most likely, but I do not know which. So if you plan to send anything, I am sure there is someone you can phone at Cleveland Clinic who specializes in locating patients. Patient's name is Bennett Lilly.
But remember, it isn't necessary or expected and you can always just continue to show support the way you always have, through e-mail, phone calls, Blogger, Facebook or wherever else we may communicate.
As for Jen and I, we will be spending the first couple of days in a hotel as we try to get into the RMH. Not sure about all that. Bennett, tomorrow, has an MRI, feducial marker placement, some lab work and other stuff scheduled. Thursday morning, at around 6:00 AM or so, we arrive at the surgery unit to hand him over.
Then? It's out of our hands until we get to go see him later that afternoon in recovery.
I will update as much as I can. I will walk you through it as much as I can. I know many people feel connected to this, and I will do my best to be sure you are not out of the loop. Forgive the impersonal nature of blogging instead of calling and so forth (to those with whom I have that kind of relationship). This, as it has turned out over the past six months, has been the single easiest way to update a LOT of people, and certainly the fastest.
Smoke 'em if you got 'em...it's gonna be a long, difficult week...