Tuesday, August 4, 2009
OK, so worry and anxiety had us up late.
Bennett didn't go to bed until after 11:00 PM, then up between 1:30 AM - 4:00 AM. Went to sleep. Seizures at around 6:00 AM. Back to sleep. Seizures again at around 8:00 AM. Then back to sleep again.
Wacky night. We are tired.
Of course, now a new problem to solve. Sleeping in his crib, I am in my upstairs office listening for him. The first thing I hear is a thwack of his face into the upper bar of the crib. Without making a sound he had woken up from the seizures, stood holding on to the sides of the crib, then thwacked his head into the crib.
No cry, no sound, no whimper, just thwack thwack until I ran in there.
Now, the crib needs to get the padding treatment, cause this is new behavior. Previously if seizures woke him up at night he would make sound while seated. Now, he doesn't.
Now he's downstairs with my Mom, she's in for the week to watch him because Jen's parents are on vacation. I should be working. I will be working soon. Hands are shaking, I'm nervous, anxious, unable to focus and need to purge. I'll get back on my work task in a second.
Responses to last night's Blog comments. I've been super shitty about acknowledging people's comments lately, and according to everything I read about Blog Etiquette, you should respond to people who leave comments. What do I know?
Cleveland Clinic is really good. I told you about some of it privately, but I will say again...they have thus far bent over backwards for Bennett. I feel good about him being there. I recommend them highly.
Thanks. Danielle is at a different hospital though. She's in Detroit.
That's what I keep telling people. I may not have an answer tomorrow or today or this week. The REVIEW is today, that's all. Who knows what will happen.
Thanks...yeah it did come fast, that's for sure.
I take Xanax every day now for my raging anxiety. I try not to take it until much later in the afternoon, but I may be taking it even before noon today. Just makes me groggy but it is the only thing that can handle my anxiety, which was bad before all this went down but is at maximum levels this year.
Well, aren't you the sweet one to check back in this morning! Thanks. Nah, very little sleep. Ugh...