Out of surgery, up into the Pediatric ICU for recovery.
First and foremost? Liz...I am sorry. That's heartbreaking news for me to hear. I hope maybe he was able to give some possible medical solutions to go down. I'll get with you later, but I just wanted to say that I caught your note and my thoughts are with you.
I'm fried, and it's only 4:10 PM on Day Two. Wow.
Nothing in life could ever have prepared me for seeing Bennett after the surgery. Sinead, Elaine you did your best, and I'll always love that you tried. But wow...hard to see your flesh and blood like this. And yes, I am a twisted freak, I took photos. And will continue to.
But back to quick facts. Bennett is out of surgery. Recovering well, everything is stable. He is not conscious, but we sit at the bed and try and talk to him in case maybe it soothes him. We are working on trying to figure out what medications we can give him (non-orally) to stop any seizures that might happen.
Preliminary read on what was in there. They did find evidence of the Cortical Dysplasia, they did find evidence of ganglioglioma, a tumor type that is very rarely malignant. That will be determined through a real pathology exam over the next couple of days. If it is the non-malignant type then the key to whether or not it returns is how well the removal was today. That is something that will be monitored. Another MRI is scheduled for tomorrow, and after that he possibly will be well enough to go to a regular room.
An important key point here. They did some kind of EEG test, sort of like a grid thing, during the surgery. I do not know what that is called but will later. With this test, they were able to positively identify the area they removed as THE FOCAL POINT of the seizure activity.
There's a lot of reason to be hopeful here. There's a lot of reason to be scared too. We don't know if we've beaten anything. Why am I saying this? Because I need to be certain I stress that this is only one stop on a journey and we still have a long way to go. Hell, I don't know if the seizures are gone, what he will remember, I know very very little. So yes, there is reason to be hopeful, but always remember the words of The Wolf.
But I do know that the surgery is over, he is in recovery and he is as comfortable as he can be all things considered. Me and Jen? Tired, stressed, but cautiously optimistic.
Sorry to keep stringing people along, but it's been hard to get access, a lot more goes on that I realized as far as dealing with a day of surgery on your child. And a lot of what you know is what I know, just that he's stable, he's resting and we'll be with him very step of the way.
More later as I can get to it. Apologies for not being able to answer any of the individual comments. But thanks for the support, means a great deal.