Anyway, here they are...
The Night Before the Surgery
Bennett was up early, like 4 AM or so, which was fine cause we had to be at the hospital at 6 AM for the surgery. Note the feducial markers which he did not try to remove at all. He was having a blast. What is interesting is that we used this video (watching it on my camera and passing it around) while in the waiting room as Bennett's surgery proceeded to make ourselves feel better.
The Beginning of the End
This was the start of the last set of seizures I actually witnessed on August 27th. It was the morning before the surgery, in the waiting room. I was filming and he started to have a set. As I saw that they were growing in intensity I decided to put the camera away and just hold him. So I did. These were the last Infantile Spasms caught on video. He had two clusters post-op, one Thursday Night the 27th and one Friday Night the 28th, and none since.
Right After Surgery
A quick video I took of Bennett right after the surgery. He was in an out because of all the meds and anesthesia and stuff. But it was good to see him after waiting for 6 hours and holding my breath to see him again after letting him go and handing him over to the surgery team.
Bennett Sippy Cup
Some post-surgical interaction with Bennett at home, sutures removed. This was taken a few days ago. These are some of the good moments, where he is calmer, more relaxed. though still not very talkative, but I can live with that. But at least it is not the biting, aggressive, out of control type of thing we'd been seeing, which we are seeing a TEENY bit less of each day and that's GREAT. This is what reminds me of him prior to the surgery and reminds me that Bennett is still in there, just overloaded with input right now.
Though you can see at the end how he raises his hand as if to slap me. Sometimes he'll succeed, just out of the blue. THWACK! Gotta be frustration...he WANTS to say DADDA here, he just can't quite work it out, and this was a word he has used even during Seizure Time. It's in there, he just has to figure out how to get it out. We were warned that post surgery the SINGLE most difficult thing for Bennett will be his language skills. That will require the most work and the most effort to build for him.
Anyway, thought you might enjoy. This post is mainly for you, Mom. I know you miss him. We should Skype soon, but we just never know when he will be amenable to it. The mood shifts come and go.