Sunday, September 6, 2009
Explanation of the Bomb
A few folks have expressed outrage, and rightfully so, regarding how awful it would be for a hospital staff person to call us on a Friday afternoon, at the start of a long, 3-day holiday weekend, with the news that Bennett's brain tumor was actually worse than previously thought.
I've privately commented to some people and on a message board, but seeing Holli's comment this morning made me think it might be a good idea to post about it here, because I want to be sure everyone has the same info.
This was not the hospital's fault. I called them. They called me back. As a matter of fact, I doubt they would have called me on Friday at all had I not called them. We had been told they'd have final pathology in 'a week or so', and I figured rather than wait, I'll give them a buzz on Friday to see what the final report was.
See, I was just expecting final confirmation of the originally suspected grade 1 Ganglioglioma, so why not get the info and be done with it? Had I known it was actually something a lot more rare and a lot more serious with possible long-term complications, I would not have called.
I think that Cleveland Clinic actually deserves props here, not condemnation, and I know none of you would be outraged had I explained it in more detail about how the info got to me. They could have called me back and lied to me and said the pathology wasn't ready and then done what they probably intended, have the tumor presented to the review board on Tuesday and call us Tuesday night or Wednesday. They could have just not called me back at all.
They chose to honor the request of their patient's father with a return phone call. Yeah, the news sucked, but they have done what they have always done...shot straight and not left us hanging.
Just wanted to make sure I cleared the air. Besides, let's look at a positive here, it gives us 3-4 days to do some research and be armed with questions when we speak to them again about possible continued treatment plans.
Hope y'all are having a good weekend. We ain't, but you know what? We're managing, and let's not forget...Bennett has not had a seizure cluster in over a week. And that's a very good thing.