Tuesday, September 1, 2009
We got home last night, and realized within minutes that we still have much to do for Bennett and his recovery. He was in some pain, crying, trying to get him bathed and maybe a bit overstimulated. Vomited, had to clean that up, get some prescriptions filled, lots of chaos.
This morning, after everyone zonked for the night, he was very difficult to manage. He wants to get up and walk, but is very wobbly, so we don't want him to fall and have to be right there by his side. It's a two-person job right now, it really is. Plus, Carter needs what he needs as well.
He was really in some distress this morning, and we both were thinking it was constipation. Eventually we had tried everything to console so we made the decision to go in. Glad we did too, since he was REALLY impacted. Not that it was great getting covered in piss and shit, but wow, did he relax a little after that ordeal. Poor little guy, just hadn't pooped since probably Wednesday of last week. And the meds make it that much more difficult.
Anyway, trying to take it slow for him, try to not rush around him, as he seems to disorient pretty easily. Trying to make sure Carter keeps it down and simple around him, no sudden running or jumping and all that.
He's a bit pale, a lot tearful. Not sure why. I'm a little concerned about that. Well, a lot concerned, I just have to keep reminding myself that he had surgery less than a week ago. Baby steps. Baby steps.
No seizures so far that we have seen. And we look for them ALL THE TIME. But so far none that we've been able to detect. I wonder...what should I call his official anniversary? Sophie's 3-month just came up. But do I count the seizure that the EEG picked up Sunday night as a seizure and so that's the last one, the anniversary, assuming he has no more? Or do I count the last clustered set?
See, dumb shit like this matters to me. I like to remember anniversaries. Which reminds me. Forgot to mention this in all the hub-bub of last week. Bennett had brain surgery on August 27th, 2009. On August 27th, 1999, exactly ten years earlier I met Jennifer in person for the first time and we went on our first date. We'd talked on the phone before that and in e-mail (we met online) but the first day we met? August 27th.
Anyway, hoping that I am doing all I can for him...not sure what else I can be doing. If we had an ability to communicate this would be easier, so I could get some idea of what is bothering him when it is, but we'll figure it out as we go.
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