Here's Another Video and the Carter Re-Cap
Another video, taken a few weeks ago. Bennett spins a Frisbee in the driveway of his grandparents house.
He loves to spin things.
Listen for the coughing thing in the video. He imitates a cough he hears in the background, which he does rather frequently now (though we never know if he HAS a cough or is imitating) and that's something to note. When you are dealing with a situation like this, it's the little things that you have to use as positive reinforcement for your own peace of mind.
Sinead, one of my SN Sisters, calls them 'Inchstones'. I loved the term, and use it now as if it were my very own. In a journey with your kid who is disabled for whatever reason, you have to measure things in 'Inchstones', not 'Milestones'.
If you don't, it's extremely easy to get bummed right the fuck out. Hell, that's easy anytime, but it's even easier unless you can hang on to small positives.
Oh and I know some folks were expecting a report on Carter and the visit up to CC. I'll give you as brief a version as I can. He had a great time. I posted some photos of the trip on my Facebook page. Go check them out there, I don't feel like re-formatting them for this space right now.
But as far as Carter going along...he was delighted to be there and I think felt much more connected to all of us. He was inquisitive, funny and we got to spend a lot of quality time together. Funny that he could not grasp the concept that Hotel TV is shit compared to anything we have at home (as far as selection, etc.).
He did great through all the waiting for the MRI and junk, and he did even better having to wait at least 2 hours, maybe more, to get anything to eat or drink, cause none of us wanted to do it in front of Bennett since he could not have a thing. Eventually Jen, Carter and I had breakfast together while Bennett was getting magnetized.
I should mention that the last couple of hours before heading home he was a tremendous pain in the ass, as he wanted to get the hell out of there as much as we did. Very whiny, very hard to manage.
The offices were hot as hell, we waited an unusually long time and all of us wanted to hit the road. Including him.
Eventually we did.
Was it easier to take him? No, absolutely not.
Am I glad I did?